Who do i see for diabetes insipidus? and what kind of tests are done?

please help! I believe I have diabetes insipidus because for the last 1.5 or 2 years I have been drinking an excessive amount of water, at least 3 gallons a day and can’t stop. I urinate so much that now i have incontinence, sleeping difficulties, and even constipation. I need help bad but being jobless, can’t afford much. though i have emergency health insurance, the initial out of pocket deductible is so high that I am required to pay for pretty much everything including all tests. i am soo afraid and i fear both- financial hardship & failing health. i want my normal life back but instead i have to hide with my gallons of water & near a bathroom all the time.
so i know beforehand, what kind of doctor should i see? and what kind of tests do they do and what do these tests involve? about how much do they costs usually and are there any natural remedies? what else should i know to help myself and watch out for? any info will be helpul
thanks everyone, but any more info u know would still help me. about how much do endocronologist costs and about how much do the blood and urine lab work cost? &can anyone tell me about there experience w/ an endo? is there any other further work that might need to be done? can a regular doc who sends the lab work be enough and if not, why would he refer me to an endo? do i have to follow up w/ the endo continuously? what are the cheapest tests he can do for me and what are some other options for everything… doctors, tests, treatments, etc. please provide any info u can… i hate this cus i don’t lack any symptom and i don’t know what i did to get this illness:(

I have DI (aka. water diabetes). I was diagnosed with it in 2008 because my pituitary gland was messed up because of a brain tumor. I have to see an endocrinologist now. You definitely have the symptoms. You will have to give a urine specimen (pee in a cup). If your urine is very diluted, you probably have DI. The medicine I have to take for this is desmopressin. I am not going to lie to you…It is expensive. It costs me $130 for 45 pills (which covers me for 1 month). You might not have to take that much, your endocrine doctor will find the proper doses you have to take. Since you are going to an endocrinologist, he is a specialist, this will cost more then your regular Dr. I would suggest going to your regular Dr. and get your lab work done, and if you have DI, he can refer you to the endocrinologist. When I first got it, I was drinking so much, I was throwing up…and all I was throwing up was water. Be careful…you can get sick from drinking to much. You have to also be careful because if you don’t get your water, you can get dehydrated. This is because the water your drinking just goes right through you and your body doesn’t absorb much of it. I am jumping too far ahead…you might not have it. Go to your doc and get your lab work done. GOOD-LUCK

3 Responses to Who do i see for diabetes insipidus? and what kind of tests are done?
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  1. Comment by Missy | 2009/12/20 at 05:12:59

    Go to an endocrinologist

    Test? Tell the doctor your money is tight. Hopefully he’ll only give you necessary tests. Blood tests might be enough. The doc takes an educated guess at what your problem is and treats you for what it might be. If you get better, he or she was right and no further expensive tests will be needed.
    References :

  2. Comment by Nah Z | 2009/12/20 at 05:18:59

    You’ll first probably need to see (or call) your regular doctor for a referral to an endocrinologist who will be able to diagnose you with DI and treat your specific type of DI. The most common cause of DI is caused by a deficiency in vasopressin- you will need to supplement with this the rest of your life. Your doctor may do a fluid deprivation test, along with other tests, to determine the cause and possible treatments of your DI.

    There are no "natural remedies" for DI, although the vasopressin your doctor will prescribe does naturally belong in your body. Delaying treatment any longer would be in short stupid: drinking a lot of water isn’t just annoying, it’s dangerous. You’re risking potassium depletion which can be fatal.

    You’re better in a little debt and alive and healthy than the alternative. See a doc.
    References :

  3. Comment by kelliegirl38 | 2009/12/20 at 05:28:59

    I have DI (aka. water diabetes). I was diagnosed with it in 2008 because my pituitary gland was messed up because of a brain tumor. I have to see an endocrinologist now. You definitely have the symptoms. You will have to give a urine specimen (pee in a cup). If your urine is very diluted, you probably have DI. The medicine I have to take for this is desmopressin. I am not going to lie to you…It is expensive. It costs me $130 for 45 pills (which covers me for 1 month). You might not have to take that much, your endocrine doctor will find the proper doses you have to take. Since you are going to an endocrinologist, he is a specialist, this will cost more then your regular Dr. I would suggest going to your regular Dr. and get your lab work done, and if you have DI, he can refer you to the endocrinologist. When I first got it, I was drinking so much, I was throwing up…and all I was throwing up was water. Be careful…you can get sick from drinking to much. You have to also be careful because if you don’t get your water, you can get dehydrated. This is because the water your drinking just goes right through you and your body doesn’t absorb much of it. I am jumping too far ahead…you might not have it. Go to your doc and get your lab work done. GOOD-LUCK
    References :


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